Books

tosy.co.uk - Tourette Syndrome Support in the UK

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Tourette Syndrome - A Practical Guide for Teachers, Parents & Carers  NEW

Mary Robertson & Amber Carroll

 
We have just read Mary Robertson's new book Tourette Syndrome - A Practical guide for Teachers, Parents and Carers. It is very good - basic, comprehensive information, easy to understand.Good for schools if your child is at a school where they are willing to read up about TS.(Ours most definitely isn't) Reviewed by Lesley

I agree - if you only buy one book about TS, maybe it should be this one.  It's factual, accurate (I trust the author!!) and up-to-date.   Has lots of info about recent studies too.  Please don't be put off by Amazon's statement that they "expect to be able to find this title within 4-6 weeks".  I ordered it on 12.8.00, and they posted it the next day!  (I received it on the 15th)

More info on Education page

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     This book also available from the Tourette Syndrome (UK) Association  

 

 

Tourette Syndrome – The Facts

Mary Robertson & Simon Baron-Cohen

"This book, written by a psychologist and a psychiatrist who have been researching Tourette Syndrome for many years, explains the causes of the syndrome, how it is diagnosed, and the ways in which it can be treated.  Essential reading for Tourette sufferers, their relatives and friends, Tourette Syndrome – the Facts will also be of use to clinicians, GPs, schoolteachers, and anyone else seeking an accessible introduction to the disorder.  

Mary Robertson is Professor of Neuropsychiatry at the University College London Medical School.  She is an Hon. Medical Advisor to the Tourette Syndrome (UK) Association."  Well worth buying.

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      This book also available from the Tourette Syndrome (UK) Association

 

 

Children with Tourette Syndrome – A Parents’ Guide

"This handbook for parents of children and teenagers with Tourette Syndrome offers up-to-date, concrete information and compassionate advice for dealing with what is perhaps one of the most misunderstood and misdiagnosed neurological disorders.  Written by a team of professionals and parents, the book covers medical, educational, legal, family life, daily care and emotional issues." I found this one a good investment

 

 

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Don’t Think About Monkeys

Edited by Adam Ward Seligman & John S. Hilkevich

"This is a remarkable collection of stories written by fourteen people who live with Tourette syndrome.  Ranging from three teenagers learning to come to grips with teasing to adults encountering discrimination, the collection represents the incredible diversity of a disorder as diverse as life itself."  Good read!

 

 

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Passing For Normal – A Memoir of Compulsion

Amy S. Wilensky

"I am crazy.  But maybe I am not.  For most of her life, this thought haunted Amy Wilensky as she watched her body do things she couldn’t control, repeatedly twitching and contorting into awkward positions.  Her mind lurched and veered in ways she didn’t understand.  While Amy excelled in school and led an otherwise “normal” life, she worried that beneath the surface she was a freak, that there was something irrevocably wrong with her.  After graduating from college, she happened upon a book and it was then that she realised the might have Tourette syndrome and obsessive-compulsive disorder."  I loved this book - a must buy!!

 

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   New UK Edition (now cheaper!)   USA Hardback Version

 

Living With Tourette Syndrome

Elaine Fantle Shimberg

"A Guide for Parents, Relatives, Loved Ones, and Sufferers of Tourette Syndrome.  More than just a medical text, this book also presents the personal story of the author and her search for diagnosis and treatment for her children.   Living with Tourette Syndrome does much to dispel the myths about Tourette's and provides sensible advice, comfort and hope for anyone affected by the disorder."   Another good one.

 

 

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Twitch and Shout – A Touretter’s Tale

Lowell Handler

"Oliver Sacks MD (who wrote “Awakenings”) writes:  Tourette’s Syndrome is an extraordinary condition, which may drive the mind and body to movements, thoughts, and feelings which may seem incomprehensible and alien even to those who have it.  It has, as is often remarked, ‘a mind of its own’.  Twitch and Shout gives us a most vivid description of what it is like to spend one’s life with such an alter ego.  Lowell Handler writes with enormous honesty, humor, and gusto.”

 

 

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Hi, I’m Adam – A Child’s Story of Tourette Syndrome

Adam Buehrens

"Adam is 10 years old and has TS.  He wrote and illustrated this book because he wants everyone to know he and other children with TS are not crazy.  They just have a common neurological disorder.  If you know a child that has tics, temper tantrums, unreasonable fears, or problems dealing with school, you will find this a reassuring story."  This book  tends to focus on Adam's anger and rage, and talks very little about his tourette syndrome.

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Kevin and Me:   Tourette Syndrome and the Magic Power of Music Therapy

Patricia Heenan

 

 

 

 

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Tic Attack - Tourette Syndrome.  Kids telling it like it is

This book is now available from the Tourette Syndrome (UK) Association

A booklet which is available by request from the OCD Clinic at the Maudsley Hospital in London.  Tel:   020 7740 5222 or Fax:  020 7740 5011.  The booklet was produced by the TSA of Australia, and is full of short stories, poems etc written by children with TS.  

More info from:  TSA Victoria (Australia)

 

Teaching the Tiger – A Handbook for Individuals Involved in the Education of Students with Attention Deficit Disorders, Tourette syndrome or Obsessive-Compulsive Disorder

 

 

 

 

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Does Your Child have a Hidden Disability?

Jill Curtis

 

 

 

 

Synopsis (from Amazon)
For the large number of parents who find themselves worrying about whether there is something not quite right with their child, and finding it difficult to pinpoint just what is wrong and where to look for help. "Invisible" disabilities are among the most distressing of all childhood problems. The range of these is wide and overlapping symptoms can confuse even the experts. Although the nature of the handicap may not be understood at first, the symptoms which are visible are most distressing to both parent and child. And often, as parent come to terms with the family crisis, in a desperate attempt to blame somebody for what is happening, the marriage itself may be in jeopardy. This is not a medical book but instead focuses on the social and emotional impact of these disabilities on the whole family. What are these hidden disabilities? The most common are - Attention Deficit Disorder, Auditory Attention Problems, Asperger Syndrome, Autism, Dyslexia, asthma, depression, allergies, learning difficulties and speech and language problems. This book should help you find your way through the maze of conflicting advice and offers support to those parents who have a child who is not "quite right".

Author's website with reviews of the book etc   - www.familyonwards.com

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Driven To Distraction 

Edward M Hollowell & John Ratey

Great book!  Written by a Psychiatrist with ADD

 

 

 

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Answers to Distraction

Edward M Hallowell & John Ratey

By the same authors as the book above

 

 

 

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ADD Success Stories

Thom Hartmann & John Ratey

A Guide to Fulfilment for Families With Attention Deficit-Disorder

 

 

 

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Understanding ADHD : The Definitive Guide to Attention Deficit
Christopher Green, Kit Chee

 

 

 

 

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The Explosive Child : A New Approach for Understanding and Parenting Easily Frustrated, 'Chronically Inflexible' Children
Ross W Greene

"Offers techniques for helping "chronically inflexible" children, shows how brain-based deficits contribute to these problems, suggests ways to calm things down".  According to Amazon reader reviews, this is a popular book!

Kitty Killian from Holland writes:  The Explosive Child by Ross W. Greene is a great book. It gives a totally refreshing look on how to handle inflexible (rigid, tantrum-throwing or just never-co-operative) children, like many TS-children are. Greene makes you aware of how to read the signs of a child getting into such distress, that communicating by words is not possible anymore  - and teaches the parents to get ahead of the point where the child explodes. (Sorry but my English is not too neat here). His approach is simple: have all these explosions where you forced the child to comply with your wishes helped him, and improved his behaviour? If not, try this approach, and decide before every new conflict heats up, if you find the subject so important that you are willing to risk the child exploding, or if you find it a matter for compromise (thereby teaching the child that such a thing is possible and how to do it) or whether you might just as well let the child have his way. It certainly works with us, it has cleared up our minds over how to handle in many an awkward situation.

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Obsessive-Compulsive Disorder - The Facts
Padmal de Silva, Stanley Rachman

 

 

 

 

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Freeing Your Child from Obsessive-Compulsive Disorder: A Powerful, Practical Program for Parents of Children and Adolescents
Tamar E. Chansky Ph.D.

"A resource for parents of children suffering from obsessive-compulsive disorder presents a step-by-step guide for behavior therapy that breaks the OCD cycle and can help reduce, or even eliminate, the need for medication"

 

 

 

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Polly's Magic Games
Constance H Foster
Lovely book for a child's eye view of OCD - but expensive for what it is

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The Out of Sync Child - Recognizing and Coping With Sensory Integration Dysfunction
Carol Stock Kranowitz

Recommended by many, this book has helped explain a great deal about my son

Kitty Killian (from Holland) writes:  The Out-of-Sync Child by Carol Stock-Kranowitz is a valuable book. Many kids with TS must also have SID, is my opinion after reading up on it:  Amazing that here in Holland nobody ever once mentioned SID to me. Apparently my sons hyper- and hyposensitiveness to touch, for instance, trigger or coincide with many of his tics.

 

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Cool Cats, Calm Kids : Relaxation and Stress Management for Young People
Mary L. Williams, Dianne O'Quinn Burke (Illustrator)

Quite an expensive booklet, and although useful info about self-esteem and assertiveness for young children (up to teens), not a great deal of info about relaxation in spite of the title. 

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Quiet Times : Relaxation Activities for Young Children
Louise Binder Scott

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Ready, Set, Relax : A Research-Based Program of Relaxation, Learning and Self-Esteem for Children
Jeffrey S. Allen, Roger J. Klein

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Spinning Inward : Using Guided Imagery With Children for Learning, Creativity & Relaxation
Maureen Murdock

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Biofeedback Without Machines
Soroka

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 19 August 2002  Date last updated